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#LongCovid

147 posts75 participants8 posts today

Someone please take me in very soon or I will die here.
-No masking
-Mouldy room
-No help
-Little food
-Nowhere to shower. No seat allowed, mouldy
-No aircon (w severe #POTS)
-Sister moved next door comes eat, yell
-Sensory overload
So much more. There are no places to go for severely disabled.
I need GOOD PEOPLE TO HELP ME.
I’ve been screaming for years my health & situation keep getting worse.
Help me😭
#MECFS #LongCovid #ChronicPain #Abuse #Neglect #SeverePwME

@mecfs
@severeme
@longcovid
@RAHU
@chronicpain
@neisvoid
@pwme

Someone please take me in very soon or I will die here.
-No masking
-Mouldy room
-No help
-Little food
-Nowhere to shower. No seat allowed, mouldy
-No aircon (w severe #POTS)
-Sister moved next door comes eat, yell
-Sensory overload
So much more. There are no places to go for severely disabled.
I need GOOD PEOPLE TO HELP ME.
I’ve been screaming for years my health & situation keep getting worse.
Help me😭
#MECFS #LongCovid #ChronicPain #Abuse #Neglect #SeverePwME

@mecfs
@severeme
@longcovid
@RAHU
@chronicpain
@neisvoid
@pwme

Someone please take me in very soon or I will die here.
-No masking
-Mouldy room
-No help
-Little food
-Nowhere to shower. No seat allowed, mouldy
-No aircon (w severe #POTS)
-Sister moved next door comes eat, yell
-Sensory overload
So much more. No places to go for severely disabled.
Need GOOD PEOPLE TO HELP ME.
Screaming for years my health & situation terrible
Help me😭
#MECFS #LongCovid #ChronicPain #Abuse #Neglect #SeverePwME

@mecfs
@severeme
@longcovid
@chronicpain
@neisvoid
@pwme

Mask bans already exist in certain States and counties.

Vance spearheaded a federal ban on mask mandates.

Organizing to codify the right to wear medical masks and respirators is (sadly) needed.

Masking is community care and resistance.

Illinois attempting to codify right to mask into law:

pmefa.org/

pmefa.orgHB3853: The Protective Medical Equipment Freedom ActThe website of the Protective Medical Equipment Freedom Act, a landmark Illinois bill which establishes the right to wear masks and other protective equipment.

Opportunities and Challenges in Using Electronic Health Record Systems to Study Postacute Sequelae of SARS-CoV-2 Infection: Insights From the NIH RECOVER Initiative

jmir.org/2025/1/e59217/

From the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #POTS @pots

@plaguepoems
About 5 years ago (see image below, saved this tweet before I deleted my account) I asked whether COVID would cause more ME/CFS cases and whether anyone was going to study this issue. And I was not the only person asking this!

We now have a study showing that this is indeed what happens 😢

Among participants infected with SARS-CoV-2 the incidence of ME/CFS is 15 times higher than pre-pandemic rates.

batemanhornecenter.org/covid-1

International Long COVID Awareness Day was March 15th.

From the patient-led research collaborative fact sheet:

At least 400 million people globally have Long COVID, and this number is likely a significant undercount. In the US, about 1 in 19 people have Long COVID–the same rate as diabetes. But only 7% of doctors say they’re confident diagnosing Long COVID, and a majority of Long COVID patients report having negative experiences as they attempt to get care.

1/

My friend sent me this today from an amazing snowshoe camping trip we took in 2016.

MECFS has altered my life in such a massive way that I'm sometimes at a loss for words. I would have easily hiked 80-100km in a weekend in spite of some heavy fibromyalgia symptoms back then. Now I'm happy when i can make it around the block.

That being said, I'm not the only one. I have another friend in this photo with a degenerative disorder, and I was worried my hiking buddies would disappear when i got sick and came out as trans. But they are still here and I know how rare that is.

I miss the alpine, I miss the plants, I miss the peace and the beautiful reset it gave my audhd each time, i miss the bonding with my friends, but this photo reminds me that you have to love each moment to its fullest because you never know what's right around the corner and I'm so glad I did.